It has indeed been interesting times here. I took my husband to the UVA ER last Thursday night on the advice (more like direct order) of our PCP. They have a bariatric unit and he has had the lapband surgery; he is also on meds that were prescribed at the time of the surgery and never adjusted after he lost so much weight. Oops. The doctors at UVA were also outspoken about the fact the meds were not the best ones to choose and quite possibly were not given in the correct dose to begin with. Double Oops. So they wanted to admit him for observation and to change/adjust his meds…but they didn’t have a bed. They would need to look for one. This was at 1 am Friday morning. Dearest sent me home because we were told that it would be dawn before they knew–and if I stayed, I would not be safe to drive home. So off I went, back up to Bealeton to await word.
Nearest bed? Down in Salem VA, near Roanoke. Off HE went. And neatly solved the problem of my trying to go back and forth to see him daily, using up gas and money that we do not have to get there.
So…for the past several days, I have had the house to myself. And frankly, I don’t like it. I miss him. It’s very quiet in a more than just audio sense. It’s missing his presence in the house. I have spoken to him each day, and each day he sounds better. The meds are working, and seem to be working well. For which I am glad. He’s doing better, more relaxed and not needing his anxiety meds. Which makes both of us glad. This has also given him the documentation he needs for staying out of work, even if it’s just a “personal medical leave of absence”–at which point his company keeps him on the books as an unpaid employee, within the health insurance pool and they will pay their portion–we just have to pay what would have been his payroll deductions for that insurance. We can live with that. We have several new avenues to explore for assistance and benefits and income.
So his going into hospital, while at first seeming to be a bad thing, is actually a good thing. We both agree on that. On the other hand, we both miss each other terribly. We haven’t been apart this long since the day we first met, almost exactly two years ago. And for the past 2 months, we’ve pretty much been together 24 by 7. So forgive the syrupy sweet mushiness of my saying how much I miss my beloved and he misses me.
And me…I have actually been doing some things around the house. I got those boxes in order…remember, the ones I mentioned in an earlier blog, that I wanted to sort and move? I did it! Slowly, took plenty of breaks, did it carefully but bygod did it! I can even open the other closet door now–not that I want to, because it’s full of MORE boxes, but hey. It’s a start. I even ran the vacuum because there’s enough carpeting to merit it. Found my box of books and did something I haven’t done in over two years–read a “real” book (not my Kindle). I found my external hard drive that I had been searching for! Got all my music now which makes me very happy. Took out the trash! (All by myself, just like a big girl! LOL)
Oh and I found my passport flash drive (the one with my life on it!?)–well, actually my daughter found it. I thought it was with the external hard drive, but nooooo, I had put it in a “safe” place. And promptly forgot that’s where it was. So talking to her today, I mentioned it and she says, “Is it square and black and says “WD My Passport” on it?” Yes. “I’ve got it. It was in the bag with the laptop you’re lending me.” OHHELLSYEAH! (She has been threatened with a most grievous death if she fails to bring it with her the next time she comes to visit. Just saying.)
I cleared the boxes from in front of the closet with shelves (as opposed to the one with all the “more” boxes) and rearranged/organized said shelves. Put some tchotchkes (Polish: knick-knacks) on my bamboo and iron shelving unit. Cleaned the bathroom (ok, the toilet and sink, but it’s a start). Cleaned out the refrigerator. Updated everyone daily on Beloved’s status–and this will amuse you–as well as running maintenance on his Facebook games (Castleville and Dungeon Overlord). Once I realized how close to Blacksburg he was, made sure that friends he has who still live there were made aware of his nearness–two phone calls and a visit from some of them helped make his days a little brighter.
Did my stuff on my own Facebook, including the games. Had dinner with his best friend and the best friend’s significant other. (Chinese, very good, would do it again–a major coup for me because his friend, like himself, is a “foodie” and finding new places for him that he would go back to is an accomplishment. Yay me!) Spoke to his parents each day and updated them. Spoke to my parents as well. Talked to my son and daughter (as I mentioned earlier). Slept 8 -10 hours each night, which is a major feat for me, since I usually only do about 5. Think the reduction of stress had anything to do with it? Knowing that he was getting better made me sleep better, yes?
And how is that fibro thing going? Well, there’s still pain. I suspect that there will ALWAYS be some pain, somewhere. Legs are doing better and as I move around, I realize that the soreness (rather than pain) is from lack of use–need to do some serious building back up of muscles that have been let sit too long. My arms and hands are still the worst part and I do not see how I can go back to a job (any job) that requires me to be on the computer 8 hours a day. Doing this is taking a while, as I have to stop and rest them. Do various exercise motions and generally stretch and move them to relieve pain. But all in all, I don’t feel too bad. Still limited, and almost giddy when I do accomplish something (like moving the boxes without really putting myself out of action to recuperate from it).
And while it may seem almost childish to someone else, it’s those little moments of doing something that has been un-do-able for so long that makes it noteworthy for those of us with this disease. Baby steps, baby steps. Do a little, rest a while, do a little more. Rest a little more. Build back up the endurance that I’ve been robbed of, learn how to do things in new ways to prevent pain or alleviate the worst of it. I am right-handed, but since that’s the one that hurts the most, I am becoming more ambidextrous than I already was, which was not inconsiderable. And since my ability to do things is limited, I can prioritize better, can learn to let go the things that aren’t as important to me and how to do the things that are in a less stressful and stressing way.
And I get to bring my husband home on the day after tomorrow. I go to sleep tonight, and I’m here tomorrow, then I sleep tomorrow night and when I wake up, it will be time to go get him! So in roughly 40 hours, I will have my beloved back home with me, where he belongs. And everything will be just fine.